Sally’s Notes following The Café Talk:

1. When I was asked the question by Dr. Chris Kendall (not sure if I spelled his name correctly), at 21:50 minute mark, he had asked what tests we were running with the patients came into the ER. As I stated, we only did the serum B12, because we had a meeting and they refused to do the MMA and homocysteine, so that’s why only the serum B12 was done. That was in 1999. Dr. Jeff Stuart, (my husband) working at a different hospital, did order the trio (B12, MMA, and homocysteine) on symptomatic patients. As you all know, the serum B12 can be misleading and these other markers can be helpful. There was one physician that believed in my work, and would occasionally order all 3 tests. He felt bad how things were handled with me and how it was only helping patients, read the literature and decided to continue testing on his own. After my first book came out in 2005, newer doctors joined the group, and some of the older ones finally got on board and started ordering the trio (B12, MMA, and homocysteine) together. But not all. The physicians that were interested in ordering all three tests, I would advise if we were working the same shift and there was a patient that needed testing. However, they were on their own ordering and following up on results, because I could have no part in it. By this time we were using computers and as time went on physicians began ordering their own tests without the unit secretary. It was inconsistent, and I believe working in a busy emergency department and I wasn’t allowed to help/facilitate contacting patients, patients’ private doctor for follow up, it discouraged them. Long story short, I wanted them to do all 3 tests, but they declined, over time, some of them did. When I answered Dr. Kendall’s question, I was referring back in 1999, before I got the gag order a year later in 2000. To be clear, a patient should have all 3 tests done together.

2. I wasn’t clear on Elissa Leonard bio. Elissa Leonard created E.L.PRODUCTIONS. She is an Independent Film Producer. She worked for National Geographic TV 1990-1993, Head of Story Development-Explorer (1982-1990). Producer/writer of Innovation, a weekly series on science, health and technology (Received 2 Emmy awards-outstanding special interest programming and outstanding magazine-format series).

3. Needed to clarify, if you have a MTHFR mutation you should be on methylfolate (5-MTHF) instead of folic acid (synthetic form). L-MTHF is methylated forms that the body can use. I did not hear myself clarify that. B-12 lozenges should be methyl-B12. Hydroxocobalamin injections easily convert to methyl and adenosyl-B12. I think all oral forms or lozenges should be methyl-B12 for everyone, despite mutations. They should be in all vitamin preparations. Many companies have made the switch.

My new children’s book is done and available on Amazon KDP. It is under KDP (Kindle Direct Publishing), and many countries can receive it, including the U.K.