Vitamin B12 Deficiency Support Group
The B12 Deficiency Support Group (B12d, for short) is a charity
The Charity's aims are to:
Raise awareness of this condition amongst doctors and the general public, so that people can be diagnosed appropriately.
Explain the signs and symptoms that a doctor or person who is diagnosing themselves should look out for, and how to make sure that you reach the right diagnosis and don’t confuse B12 deficiency with something else.
Ensure treatment is tailored to the needs of the patient, and where possible, make treatment available free at the point of need.
We rely entirely on donations
Signs and Symptoms
People with B12 deficiency exhibit a wide range of symptoms, including many that respond to B12 replacement therapy even though NHS hasn’t traditionally considered them caused by B12 deficiency.
We show this across the website and in our audits. A start point is to get a copy of the book
Note the book is written as a medical textbook, so it’s quite heavy going for an expert patient. We suggest you read the case studies first – there are 26 of these – to get to understand the range of presenting symptoms, before tackling the text itself. Clinicians (doctors and nurses) can of course wade straight in, but warning it’s 299 pages and over 400 references.
This website also hosts a Signs and Symptoms Assessment Calculator. This calculator is designed to record symptoms and show how they change over time so come back and record your symptoms periodically. We’re about to add a feature so you can record dosing, which will show how symptoms change with respect to dosing.
Signs and Symptoms Assessment Calculator
Dr Chandy
It is with great sadness that we have to announce that Dr Joseph Chandy (Kayyalackakom) (16 January 1941 to 20 December 2023) has passed away
Sally Pacholok – 9 September 2024
Sally Pacholok is the author of the book “Could it be B12?” https://www.amazon.com/Could-Be-B12-Epidemic-Misdiagnoses/ and film of her story – “Sally Pacholok” https://www.imdb.com/title/tt3520022/ . Sally is an Emergency Department nurse who recognised a lot of...
Tristan Blevins – 14 October 2024
Tristan delivers an NHS funded and based Diabetes Type 2 prevention program. He is also a Nutritionist and Holistic practitioner, a combination (NHS and holistic practitioner) that has delivered some of the most exciting advances in our understanding of B12...
Clara Plattel – 11 November 2024
Clara Plattel is a researcher in Vitamin B12 deficiency and brought the conference proceedings of the 2023 Rotterdam B12 conference to publication recently...
Events
When lock-down started we moved our events from face-to-face coffee mornings in Peterlee and Horden to online evening (UK time) events. This was fortuitous since we’re now joined by people on multiple continents and time zones.
Please see this page where we’ve listed the events, dates and times, and the zoom links to join them.
Where we have a guest speaker, we’ve also recorded the speaker and the events page also lists where you can watch the recordings.
You are always invited to send requests to notifications@b12d.org. Dr Chandy is sadly no longer with us but our expert patient team of volunteers will answer.