Events

We hold monthly events, 7pm UK time for 90 minutes on the second Monday of the month

Most important links: Members area (old website), Symptoms checker (needs to link to old website sign-in), Blogs, Testimonials, Events calendar

Past Events

Members meeting on experience negotiating with your doctor – 13 May 2024

7pm UK time:

This is a group discussion about people’s experiences of talking with their doctors.

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About the meeting
May’s Meeting Monday 13th 7pm UK time
A lot of our members say their doctors won’t listen and won’t diagnose and
treat Vitamin B12 deficiency.
The NICE guidance NG239 Vitamin B12 deficiency in over 16s: diagnosis and
https://www.nice.org.uk/guidance/ng239 was issued earlier this year, so most
GPs probably don’t know it exists. It makes a number of key changes to
common practice, including advice for recognising B12 deficiency (people’s
symptoms are highly variable); the use of the Active B12 blood test and
recognising that many people self-treat; and a much wider range of symptoms
and signs/ trigger factors than previously.  There are some things we didn’t
manage to get into the guidance, including blood serum ranges (no mention of
problems with the standard blood serum B12 test (Carmel & Agrawal 2012) and
the thresholds indicated are known to miss some patients (McBride 2000), but
it’s a big step forward for most people.
So, you first need to ensure that your GP has a copy of the new guidelines
NG239, and if possible a copy of Dr Chandy’s book from
<https://b12d.org/book> www.b12d.org/book .
But we’re going to dedicate May’s meeting to people’s experiences of talking
with their doctors.  Richard is recording the meeting and we’ll edit the
conversation to compile the biggest frustrations and the best advice. Please
come with your experiences at the forefront of your mind.

 

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United Kingdom: +442034815240,,81971304559# or +441314601196,,81971304559#

Meeting URL:

https://us02web.zoom.us/j/81971304559?pwd=aE0ySlZDQUZEM1FsNENndHYvU01KQT09

Meeting ID:

819 7130 4559

Passcode:

323380

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Meeting ID:

819 7130 4559

International numbers

Annie Barr MBE – 8 April 2024

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Meeting Summary

Info: Summary of the Annie Barr event goes here

Grahame Morris MP for Easington (including Horden) 11 March 2024

B12 Health And Inequalities

Video Link
Meeting Summary

Grahame Morris has always supported the Charity B12d, from when he supported John Cummings in the Easington Parliamentary Office, right through since his own election in 2010. He worked in NHS so he has the right background for a medical charity, and he’s interviewer (off camera) for many of the Patient Stories on https://b12d.org/testimonials.

Dr. David Grimes

Vitamin D And B12

Video Link

 

Meeting Summary
13 Nov 2023

David Grimes gives an account of the importance of Vitamin D and its relationship with Vitamin B12.

Sarah Myhill

Dementia And The Importance of Vitamin B12

Video Link

Meeting Summary

The video discusses the relationship between dementia and vitamin B12 deficiency. It covers topics such as how vitamin B12 deficiency can contribute to cognitive decline and the development of dementia symptoms. Additionally, the video explores the importance of maintaining adequate levels of vitamin B12 through diet, supplementation, or medical intervention to support brain health and potentially reduce the risk of dementia. It also provides insights into the signs of vitamin B12 deficiency and strategies for prevention or treatment. Overall, the video emphasises the significance of vitamin B12 in maintaining cognitive function and addressing dementia-related concerns.

Patrick Holford

Is B12d Driving Cognitive Decline And Mental Illness?

Video Link

Meeting Summary

20 November 2023

Is B12 deficiency driving cognitive decline and mental illness? A presentation by Patrick Holford www.foodforthebrain.org

Vitamin B12 is unique in that it is only found in foods of animal origin and depends upon stomach secretions to be absorbed. Patrick Holford, founder of the Food for the Brain Foundation (foodforthebrain.org), presents new evidence that B12 deficiency is far more widespread than realised and is driving all sorts of mental and neurological problems including cognitive decline and, ultimately Alzheimer’s. This webinar, offered freely by the B12d Support Group, is essential for any health care practitioner interested in mental health and also anyone wishing to preserve and optimise their brain function.

00.00.01 Introduction by Hugo Minney from B12d.org

00.01.37 Patrick Holford guest speaker from Food for the Brain Foundation

01.19.57 Questions and answers

Links: https://b12d.org https://foodforthebrain.org/phcrefere… https://www.club-12.org/ https://www.bmj.com/content/383/bmj-2…

Julian Owen

CLUB12

Video Link

 

Meeting Summary

13 Nov 2023

Julian Owen Introduces CLUB-12 and gives an overview of the issues concerning Vitamin B12 (Cobalamin) diagnosis and treatment.